An Individual Perspective on Friedreich’s Ataxia

The relationship between Dysarthria and individual communication aspects of Friedreich’s Ataxia

To try to focus on the ugly reality of Friedreich’s Ataxia, along with the term and phrase dysarthria will have many confused. Meanwhile, those suffering from the condition find it increasingly difficult to engage in meaningful communication about their condition.

And so, those of us suffering from this blight, find ourselves baring the brunt of stereotype, stigma and presumed lack of ability. Our place in the economy is defined by our “disutility”.

But there is no doubt we can still achieve. In my own case, my achievements have been considerable, but there is still the possibility of further and ongoing achievement, as there is with all who have to battle with Friedreich’s Ataxia.

In my recent blog post, I discuss the relationship between Dysarthria and my individualistic style of Friedreich’s Ataxia. Read it here.

Peter Gibilisco

 

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